This is a pin of my all time favorite quote. It is by William Penn, and I try to live my life by it. A few days ago, I saw a friend of mine’s post on Facebook about her son, Apollo. Apollo is one of the sweetest, strongest, and most incredible kids you will ever meet. He’s been handed some challenges in life as he was born with Ichthyosis and also suffers from Cerebral Palsy, Autism, and Encopresis (lack of bowel control), but he keeps smiling and remains an inspiration despite his pain and suffering. Here is a picture of this amazing boy.
His mom (an equally incredible woman) set up a page on Facebook called “Apollo’s Creed” to give friends and family a chance to donate to help her provide the best and most comfortable life possible for him. In the about section she writes
“My son Apollo was born 4/20/05 a preemie with Ichthyosis, a rare skin disorder characterized by dry scaling skin that may be thickened or very thin. Ichthyosis causes complications like dehydration, infections, chronic blistering, overheating, and rapid-calorie loss. It was unexpected and shocking to the staff and myself to see a baby almost skinned alive. He could barely wear clothes the first year of life. Due to also being diagnosed with Cerebral Palsy and Autism he did not start walking or talking till almost 4. He also suffers from Encopresis (lack of bowel control) at 9 years old he still wears a diaper at all times. I was a single working mom missing weeks and months of work to be with Apollo. When he turned 7 I left the workforce to become his fulltime caretaker. Any one of these 4 diagnosis is hard enough on a child and Apollo got hit with a quad whammie. When he is comfortable in his own skin he is the most amazing, sweetest, helpful kid ever. He is loved by all. My goal as a parent is to provide him with the best climate to make his skin manageable. We have visited dry climates, hot climates, cold climates and humid climates. Last winter we were fortunate enough to spend 3 weeks in Hawaii over x-mas and New Years. It was the best he has ever felt and looked. Since then, he has been begging to move there so he can be a “new boy”. Until recently I had a plan, a place and a future set to move there. But things fell apart. I promised him the moon and didn’t deliver. Please help “Apollo’s Creed” to be a “new boy” and have a chance to live in comfort on the outside, so we can concentrate on the other 3 internal issues he has going on inside.”
To learn more about Ichthyosis, click on the following pin:
It’s always been my philosophy that if a friend, family member, or anyone for that matter asks for help, then you help…you do whatever you can do to help. I donated, but I wanted to do more, so I decided I would run a 5K to raise money for this little guy. I told my husband about it and about Apollo’s story, and he immediately wanted to help too (see why I love him so much!), so he is going to do the 5K for Apollo as well.
Sometimes, the problems in this world seem to be so many, and I feel so small and wonder how I can make a difference, and I am reminded of a quote by Mother Teresa – “Never worry about numbers. Help one person at a time, and always start with the person nearest you.” Well, here is a chance for you to “help one person”.
Ways you can help:
- You can donate to Apollos family by clicking on Apollo’s Donate Page or you can go to Apollo’s GoFundMe Page. Every dollar counts – there’s no donation that’s too small.
- After donating, please post a comment on the 5K event page letting us know you donated and how much. I have an anonymous donor who is willing to match up to $250.00, so I want to keep track of donations!
- If you wish to remain anonymous, please message me with the amount.
- You can contact me on Facebook as well anytime.
- If you would prefer to send a direct donation to me please contact me and I will give you details where to send a check to.
- If you are unable to give monetarily right now, please consider re-blogging this post, or sharing the 5K event page on your Facebook page. Please pray for this cause, and tell your friends and family – do whatever you can to help.
In everything I showed you that by working hard in this manner you must help the weak and remember the words of the Lord Jesus, that He Himself said, ‘It is more blessed to give than to receive’. ~Acts 20:35
Give generously to him and do so without a grudging heart; then because of this the Lord your God will bless you in all your work and in everything you put your hand to. ~Deuteronomy 15:10
Here are some more pictures of Apollo and some pictures of his skin:
Apollo and his mommy – kissing his owies
Apollo’s side before being bandaged
Bandaged and sleeping
As always, he’s still got that adorable smile on his face!